April 30, 2019 @ 9:27 AM
In a typical research project, controlled consistency and predictability are key. We have an imperfect sampling base.
- There is no control group. This is not a double blind study where we control everything.
- Our Boxers are on meds. Most of them. Not all them. Not the same meds. Not the same doses. For those who are, we are not measuring the impact of PD on them in their natural state, but we are measuring them in their altered state. And if they change meds frequently, both which meds they take and dosages, then we are measuring their altered altered state.
- PD Boxers tend to be middle to upper class PDers. Where are the low income fighters?
- The physical tests take less than 30 seconds each. 30 seconds times 12 tests is 6 minutes. Anyone can be their best self 30 seconds at a time. But they cannot keep up that energy and intensity all day. It would be exhausting.
- Boxers self-select themselves into the program. There are lots of PDers who aren't willing to put in the work, are concerned about cost, don't have transportation, etc. So, this study is of the strongest, most committed, determined and motivated PDers.
- Boxers have pacemakers, replaced hips, bad backs, diabetes and more. A boxer who can't do one or more of the physical tests may be limited by their bad back, not their Parkinson's.
- Many of our Boxers are old. How many Sit-to-Stands should a healthy 90 year old be able to do? There is a chart for that. But, what if their bad back or replaced knees stops them from doing their best?
So, we say that the BwP Project measures the quality of life and physical capabilities and limitations based on age, weight, overall health and Parkinson's.